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Would I have had an abortion?

December 21, 2022 January 15, 2023 / Azaan and Joubert's Syndrome

It was at my 20-week scan when I was told about my unborn baby. Like most mothers I went in with the excitement of finding out the gender only to find out something quite different. ‘His brain has not fully formed’, I listened blankly to what they found from the scan as if it didn’t …

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Disability and Stigma in the Pakistani Society

December 4, 2022 January 25, 2023 / Azaan and Joubert's Syndrome

‘Disabled’ is a word which most people of the Pakistani community steer from acknowledging or accepting or even using. After I had Azaan, I was told many times by people of the Pakistani ethnicity that I have done something wrong in my past for Azaan to be born this way. And that I must seek …

Disability and Stigma in the Pakistani Society Read More »

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